Can hardly believe it’s already the 24th Jan 2014.
I haven’t managed to do many posts in the last while, I know.
Everything has been too difficult.
Same old story . . .
Incase anyone thinks I am being a drama queen – my husband was almost in
tears the other night. And was saying things like “this is a terrible life” . . ,
NB. He won’t thank me for quoting this here – but I have to.
As very few people can have any idea of how much struggling with CFS/ME long term takes out of you, and your partner. (Where you’re lucky enough to still have one that is.)
When there has been so little help available.
This is just a very brief update :
On Monday 27th Jan I will be getting the benefit of a 5 day in-patient stay (treatment and rest) in the Homeopathic Dept of Gartnavel Hospital in Glasgow.
And while I could say :
At last – some much needed help after what feels like a 25 year struggle, etc etc etc . . . I do realise I am very fortunate to be offered this at all.
There are many people with CFS/ME much worse than me.
And so many people are just left to rot. Which was what I felt had happened to me – until recently.
Looking forward to this has without doubt given me a big mental & emotional boost – because how could this week fail to help me ?
Even just a little bit will be a huge bonus.
They are a Centre Of Integrative Care after all – which sounds ideal for people with CFS/ME.
But the effort involved in sorting out various work things, putting some changes in place, etc – has had a bad physical effect on my health this past 2 weeks.
I’m getting that heavy pressing weight in my chest again. Lots of other symptoms too – but the weight on the chest (and out of puff so easily) is a problem that isn’t easily ignored.
I haven’t even been able to give much thought to what I want (and need) to take into hospital with me yet. And right now I have so little energy left that I can see me arriving at the hospital with just my handbag and maybe a toothbrush in it.
And little else !
But this is meant to be a positive post – and I have no doubt this coming week will benefit me. Even if I do arrive looking as if I’ve been pulled through a hedge backwards . . .
And I’m really grateful for this chance.
I don’t think there are many of these Integrated Care centres throughout the UK.
I am very lucky that this one exists right here in Glasgow.
Roll on Monday . . .
Jan 25, 2014 @ 11:18:23
I’ve not heard of this integrated care units before, or at least not NHS anyway. It sounds really promising. I wish you lots of luck for the week ahead and hope it is at least a little helpful. I look forward to hearing what you gain from it when you’re home and have the energy to blog again. Best wishes to you.
Jan 26, 2014 @ 17:53:26
All you’ll need is your handbag and toothbrush. And maybe clean pants? Really hoping it goes well for you. Best wishes