I realise I haven’t posted for some time.
The last few years is the worst my CFS and health has been for a long time. And it’s not really getting any better at the moment.
If anything it has possibly been even worse since maybe February-ish.
But to be honest it is hard for me to tell anything for sure.
The “brain fog” symptoms (ie, cognitive dysfunction) are quite possibly the worst they have ever been.
Plus the increased sensitivity to any stimulation (sound, TV, movement, brightness, reading, using computer, etc etc).
And all of this has been very severely disabling.
All I want is proper rest, head and brain rest more than anything. If that makes sense ?
But I remain hopeful, as I have some reasonable days. Even if they are quite few.
I guess I’m just posting this out of frustration, in the hope that I’ll feel better (emotionally that is) once I’ve done it.
And to keep my Blog going – as I have been neglecting it.
Well, I have been managing almost nothing much of the time.
The smallest thing takes so much out of me, and the time needed to recover from it seems to get longer and longer each time.
So bloody difficult . . . .
But everyone with CFS and ME will know what I mean.
I haven’t managed to get outside the house for nearly 4 weeks now. The Easter Weekend has just passed in the blink of an eye.
Husband had the full 4 days off. I was glad he did – he was well overdue a break and some relaxation. I just wish I had been able to enjoy more of it with him, but have been in bed throughout most of the time.
The thing that has probably disappointed me most was not being able to get out into the garden. Ok, it is a mess out there, no doubt to our neighbours’ horror. But I would love to have been able to sit outside and feel the fresh air and sunlight on my face.
I love the sun.
However we did enjoy some tasty Chinese food on Sunday night and a couple of glasses of wine. And despite my ability to tolerate TV being very low just now – we did manage to watch a good film.
So it wasn’t all bad.
Easter Weekend – what happened to it ?
April 22, 2014
Uncategorized brain fog, food, frustration, fun Things, My Life Today, PEM, sensitivity, TV, wine 1 Comment
A Good Weekend
September 9, 2012
Uncategorized fun Things, Glasgow, nature, outdoors, relaxing, TV, walking, wine Leave a comment
Well this weekend was good.
Not that I did anything mega exciting but it was the 1st time I had been out then house properly during the daytime for 3 weeks !! Did some walking and got fresh air.
3 weeks – how does this happen you may ask ?
Well in CFS or ME land it is unfortunately all too common at times. And the last few weeks have been a bit difficult.
But won’t dwell on that now.
My husband came to take me out both days and did all the driving around.
We did some perhaps dull things like go to B & Q, and shops etc – but even this I enjoyed (up to a point. . . ) as I was glad to get out.
Today was the best of the 2 days.
We had a nice long, slow, peaceful walk thru Kelvingrove Park in Glasgow’s West End – and even around some of the streets in what is called the Park Area just into the West End.
It is full of the type of properties I love – old traditional houses and flats from victorian times. All so distinctive – the lovely detail in the buildings and the big windows. I find it relaxing just looking at them.
Then we found a cafe within the park and had a nice coffee and a break.
We did other things too but the time in the park I found the most rejuvenating – physically and mentally.
Its now evening and I’m a bit tired.
But its more like a natural tiredness – rather than that awful CFS/ME tiredness which really is beyond description.
Hubby is still here – and we’re just going to settle down and watch some TV now.
And will have a nice glass of chilled pinot grigio wine.
Sat night with Hubby
September 1, 2012
Uncategorized enjoy, family, food, fun Things, relaxing, TV Leave a comment
Telly & Wine
Just a short fun post – to try to add some balance after all my moany posts.
Tonight my husband will be coming over – we have been living apart since January (which is another story for another post sometime . . . ).
Anyway – the plan is to just slouch & watch telly. Maybe some repeats of Downton Abbey that I have recorded. We both love it.
Will have some dinner – that he may cook with a bit of luck. And most def some chilled white wine – which will banish all thoughts of tenants, o/s rents, repairs . . blah blah blah . . out of my mind till Monday.
Looking forward to that and just chilling out.
Your Jaw Never Gets Tired 