Home

Death of another ME sufferer

8 Comments

image

I wanted to do this post about the very sad death of Jodi Bassett who was a long term sufferer with Severe ME. Probably Very Severe ME.

She died on 11th June 2016.
She was just 40.
She had suffered from Severe ME since she was 19.

She created an amazing and comprehensive website called The Hummingbirds Foundation For ME.
http://www.hfme.org.
To help others.

I think this was mainly done from her bed as she was so ill and disabled by her ME.
To quote from her website, its purpose was :

” Fighting for recognition of ME. And for patients to be awarded the same basic human rights as those with similar neurological diseases such as M.S. ”

I’ve only been able to read tiny bits of the site because of my own symptoms being bad a lot of the time.

Jodi explained on the website

” I’m 100% housebound and 99.5% bedbound.
Yet like so many other ME sufferers I have had to fight so hard just to try to get even basic help and understanding from doctors, friends and family members ” .

That sums it up really.
The almost impossible position that people with ME are in.
We have to fight so hard for anything.
But the exertion makes us even more ill.
Such a vicious circle.

I’ve given personal examples of this throughout my blog.

The news about Jodi’s death I read on twitter. Where I get most news.
There were many tweets about it on Twitter.

People were very saddened by the news.

In the meantime I wanted to help raise awareness. 

And express my sadness for Jodi and so many others who have died.

R.I.P Jodi

The Bankruptcy stuff just keeps getting worse . . .

Leave a comment

image

My brain is exhausted and burned out.
Totally fried.

The never ending Bankruptcy stuff is still going on. No end in sight – 2 years now.
In fact its worse than that. 

I have a letter from the Trustee In Bankruptcy dated a month ago. It states that I may be made bankrupt AGAIN. Or sequestrated – to use the correct Scottish term.
It’s not definite, but still shocking to read.

The whole reason for the Bankruptcy (which was voluntary) was because my health was so poor at the start of 2014.
My ME was severe and I was too ill to carry on. I couldn’t do anything more.
I know I keep repeating this.
Sorry.

Because my health has been so bad,  I haven’t been able to communicate effectively with the Trustee In Bankruptcy. Any time I have tried it goes wrong.
The “brain fog” that comes with ME has been too severe and has ruined any communication attempts.

From Day One I had begged for everything in writing. Because of the brain fog.
But it doesn’t happen.
(Its often very hard for me to read stuff too, and digest the information. But at least if I have a letter or email I can read it over and over. 10 times if needed. Even then, I may still not understand it because of my ME. But there would be a bit more chance of it.)

Many times over the last 2 years I’ve been asked to do things I couldn’t do. 
Or provide information I couldn’t provide.
Or to read long documents and sign – which I couldn’t read.
All because I’ve been too unwell.

The WHOLE POINT of the voluntary Bankruptcy was to hand everything over to the Trustee.
So that they would deal with EVERYTHING.
Sign EVERYTHING.
Take EVERYTHING to do with the 15 properties away from me.

I know I have mentioned this before too.
Sorry.

Then I’ve made myself even more ill with trying to explain this to them. That I’m not able to deal with anything.
Over and over.

And to the Bankruptcy Adviser.

And to my husband.
Because they will phone him at work (while he is dealing with gas and the public) and he just agrees to anything. Says “that will be fine” – as he wants to be helpful.
Then I get put under pressure to do or provide what was asked for.
And I’m usually not able to do it.
Or not even sure what I’m being asked to do.
Or why.
As usually nothing in writing. No guidance. No explanation.

The stress of this has been abysmal.
Utterly abysmal.
It has almost finished our marriage.

For most of the last 10 weeks we haven’t been able to live under the same roof.
No choice any longer for me.
We haven’t split up – we just can’t be in the same place while this is going on.
NB. This is no easy choice.
Given that I can hardly look after myself. With food etc. So I’m eating quite poorly nuch of the time. And I’m in bed so much.
And it is very lonely. As I may speak to not a single person all week until hubby visits at the weekend.

But the stress has been too much for too long.
I felt I was getting pushed to the point where I was at risk of having a stroke or a heart attack. Or a total psychiatric breakdown.

Many times in this blog I have talked about the severe headaches and the disabling chest pains. Plus all the nightmares.
But in real life nobody takes anything I say seriously.

So many people with ME or CFS have an endless battle with medical professionals to be taken seriously.
I have had that too.
But I also seem to be in a battle with the Trustee In Bankruptcy. And the Bankruptcy Adviser (although I’ve given up on that now.)
And even with my own husband at times.
Just to be taken seriously in what I’m saying. Begging them all to hear me.

I’m so traumatised and angered by the whole Bankruptcy thing that me and my husband can’t discuss it at all now. I go into a complete meltdown every single time.
Then my ME is even worse afterwards.

Plus I’m fearful for my husband’s health too. He has high blood pressure now, caused by all of this I’m sure. And needs various medications for it.
All the rows and shocks are very bad for him too I’m sure.

I need to be able to do a letter of response to the Trustee In Bankruptcy. Because there seem to have been some misunderstandings.
They seem to think I have refused to do some things. Thereby “not co-operating” with them. This can be very serious – that much I do know.
It’s not true of course.
And I have to be able to tell them this.
But I can’t.

Because my brain will not work.

A simple letter, and yet I cannot manage this.
I will keep trying of course. But God knows how long this will take me.

This situation really is not fair.

To say I could be made Bankrupt again – because I haven’t been well enough to do things. Or do them quickly enough.
And the whole Bankruptcy was because I could hardly do anything any longer.

If I was able to make phone calls, read letters and documents, and reply clearly and in a timely manner – I would not have needed voluntary Bankruptcy in the first place.

This has been the worst experience of my life.
Because it has all been so out of control to me. Filled with shocks.

I feel like I’m being hammered all the time.
Like being made to walk on broken legs. Over and over.
But its not my legs.
It’s my brain and automatic nervous system that are getting more damaged every time.

#MillionsMissing – another photo

1 Comment

image

Following on from my last post on the #MissingMillions day on 25th May 2016.
Here is another photo taken on the day of a lot of empty pairs of shoes that were sent.  This was in one of the American cities.

I just could not work out how to add this photo into the previous blogpost – in place of the one I deleted. Which would have been better.
I realise it is probably very simple when you know how . . .
But I struggle a lot with using any tech things like tablets, mobiles, laptops, etc. So many ME symptoms get triggered off, or made worse.
Hyper-sensitivity, electro sensitivity, or whatever . . . In any case, it can make simple things difficult and painful to do.
Just sending text messages can be torture even with my smartphone’s brightness on the absolute lowest setting.

Anyway, I’ve probably mentioned this before.  But just to explain why I have done another blog post just to correct a photo.

Making a meal of something that ‘should’ have been simple . . . .

Missing from our own lives

6 Comments

This was the scene in one American city yesterday – just one city.
For a day of worldwide protest called #MissingMillions.
Update :
Photo removed – see notes in Replies section. Sorry for confusion.
I will try to insert another photo into this post – when I have the energy to work out how to do it. Not very good with tech stuff like this . . . !

The shoes belong to people with ME who sent them in. Or got someone to send them. (I didn’t even manage to do that.)
To represent the fact that so many of us with ME are not well enough to attend a protest. Even if it was on our doorstep.

We are missing from our own lives.

And from the lives of our friends and family. Even much of the time from the lives of our husbands, wives or partners.

We are pretty much invisible to the world.

I am exhausted after just following it on twitter yesterday.
To the extent that I haven’t been able to wash, get dressed, or eat any proper food today. Just snacks.
(But I have had many days where I have been much worse than this.)

I wanted to do this blogpost as it was a very emotional thing to see all the photos of empty shoes.
Incredibly emotional.
So many lives going to waste.
And I bet all these shoes only represent a small percentage of the number of sufferers.

It was uplifting too.
And I felt less alone than I have done in a long while.

Surely this will help society realise that we have a serious illness which is very disabling ?

And that we’re not just a bit tired.
Or having a nice sleep in bed.

I wish . . . .

ME Awareness Day 2016 : Comments from sufferers

Leave a comment

image

I wanted to do something for today but am very lacking in physical and mental energy.
So I am just posting a selection of comments from people that I came across on Twitter.
I think these well describe the situation we are in.

“Many people with ME are suffering against a backdrop of ignorance and disbelief”
Sarah, England

“I’ve been ill for 10 years but was only diagnosed in 2014”
Amelia, UK

“If you phone the NHS seeking a doctor who has any knowledge of this illness, they cannot name one person. Not one”
John, UK

“Daughter has ME in UK and little support. GP commented ‘you’re not that bad are you?’  I told him he only sees her when she is well”
Person in UK

“People with ME doing exercise under medical persuasion have become bedridden and appallingly ill”
John, Scotland

“It is very sad that government have allowed an entire disease to go unchecked for 3 decades”
Kati, Vancouver

“I am only 31 and yet everday things like taking a bath exhaust me”
Mary, USA

“People struggle to comprehend the enormity of the situation of people with ME. It just seems too unbearable”
Nicola, UK

“Diagnosed with breast cancer. Astonished by reactions. Where were all you caring people when I was much more ill with ME/CFS ?”
Linda, Belgium

“I used to be ashamed of this, but I have almost no support. One friend. Daughter sees me once a month. Have severe progressive ME and alone”
Louise, Canada

“I know far too many people who’s loved ones see, disbelieve, make life hell for the person with ME. And leave”
Lindy, area not stated

“So many people have said to me ‘it must be great to stay in bed all day’ . Well No, it actually isn’t”
Female, UK

“Sat on the bathroom floor because I am too tired to dry myself”
Person in UK

“People close to us must also find acceptance : understanding that ME isn’t a mental block and we can’t just run it off”
James, UK

“I’m always amazed at the amount of people who aren’t accepting. The psychosocial view of ME invites judgment on the patient”
Henry, UK

“What does it say about our situation that we have come to EXPECT neglect, disbelief, unprofessionalism and dismissal from doctors ?”
ME Action Network,  Global

“I fought so hard to recover from my broken neck and become a triathlete and Advanced Personal Trainer, yet I cannot beat damn ME. Says it all”
Carmel, England

“I can relate to that. I survived a rare aggressive form of Non-Hodgkins Lymphoma,  but I cannot beat ME”
Female, UK

“Patients are left household, bedbound and even fed by tubes. We as patients have to raise awareness and funding alone for ME/CFS”
Jade, England

“And yet 1 out of every 4 people with ME have lower quality of life than people with heart failure, end stage AIDS, or stage 4 cancer”
Kit, USA

Needing to be heard

3 Comments

image

Its been over 3 months since my last blog post.

I have so much I want to write about but haven’t been able to. Because of all the usual ME symptoms. Profound exhaustion and weakness, pain (mainly the headaches, despite new glasses), appalling brain fog (aka cognitive dysfunction or brain dysfunction) and hyper-sensitivity to using anything like a PC, a tablet, or a mobile phone most of the time. Or looking at a TV screen.

And the fact that stuff done on a good day just goes on to cause a crash the next day again. And then I need time to recover from this.
An endless vicious circle . . .

These symptoms have been making my life a misery for a long time now – years I think.

  • I haven’t been outside in the fresh air for 2 months now. Not by choice.

  • I am still having to spend a huge amount of time in bed. Not by choice.

  • I get to see or speak with virtually nobody apart from my husband.
    Not by choice.
    eg. In the last 6 weeks I have been in the company of 2 other people. For maybe 9 hours in total. Spread over two occasions. (This is less than 1% of the time.)
    Even one of these occasions probably wouldn’t have happened unless hubby had been present. As I think the visitors wanted to see him rather than me.
    As he says – “everyone likes me” !
    He is right of course – people do like him. He is always friendly and fun. And has energy. And makes a joke about everything – never serious.
    I must seem dismal by comparison.

    • I can hardly read anything – apart from links to short news articles (usually via twitter).

Reading books is still very hard because of everything involved with the “brain fog” – as well as the physical exhaustion of course.

For instance : I have been trying to read Eat Pray Love by Elizabeth Gilbert for possibly almost a year now. I first bought the kindle version and downloaded it onto my tablet. To read in bed, usually lying down. But I had to give up on this as (1) the tablet was often too heavy for me to hold, and (2) I very often can’t tolerate the brightness from it, even on lowest setting.
So I then bought the book (again) – the paperback version this time. By the time I managed to do this (as using the internet can be torture) I had to start reading it from the beginning again. And I’m still struggling.

I can’t read comfortably with my new £310 varifocal glasses (thanks Specsavers). So I have to read with my glasses off which = headaches. And the brain fog means I have to keep reading and re-reading the same bits. Over and over. And this isn’t a difficult or challenging book. Its an enjoyable easy read – or should be.

  • Using the Internet is torture most of the time – because of my hypersensitivity to bright screens. And pushing on triggers headaches very fast. Then it feels like my whole automatic nervous system goes haywire, heart pounding, feeling wired and hyper, etc.

  • Using emails to keep in touch with friends is also hard and exhausting. Usually its just too much.
    I think the last email I did was in December. To a friend I hadn’t seen since the previous December. I was concerned incase there would be a short-notice visit over the Xmas period. As there would be so little chance I’d be well enough for this. So I tried to explain this in the email, because I did hope to see them.
    With headaches, brain fog and the torture of the bright screen – the email took me a whole evening to do. About 5 hours. It wasn’t massively long. But I needed so many breaks.
    And I don’t think the person has even read it yet. As her laptop was out of order.

  • Watching TV : this I can do in small doses. There was a long period when it was almost totally intolerable for me. But I still struggle with bright colour, movement on the screen, sound changes between channels, or at adverts, etc. I have the final of Strictly Come Dancing recorded from December. I wanted so much to watch this – especially as my long time favourite Anton Du Beke was in the final for his first time. Ok, I know now that he didn’t win. But I do still want to watch it. However, as yet this hasn’t been possible for me.

  • Phone Calls : mostly impossible and/or pointless – as I struggle to remember anything. Important calls are pointless – the more important the call the worse my brain fog seems to become. And people get so annoyed when I have to ask for a letter or email to confirm everything said . . . !

    • Music : even listening to music can be too much. With sound sensitivity. If I’m in bed then my option would be listen to music on my mobile from U-Tube. There is a whole world of choice there. But if I’m too sensitive to using my mobile then even this can cause symptoms to worsen.

NB. Not meaning it to sound like I want to spend all my time reading, listening to music, being on the internet, using the phone or email, or watching telly.
Just saying that if I can’t ‘even’ do these small things it makes for a very dry life.
When I can hardly get out or see people. Or do much at all.

How do you stop yourself sinking mentally and emotionally ?

 

On the medical/health front :

  • I am successfully registered with a new GP surgery now. This worked out because they accepted new patients without the need for a face to face visit with the GP or a nurse. Just forms submitted.
    As yet I haven’t been well enough to actually meet the GP or even manage a phone consultation. A few were booked but I had to cancel them every time as not well enough on the day.
    Some meds I’m still being allowed on repeat prescription. Others have been stopped a long time ago, eg. Vitiman D. As I need a blood test check whether I still have a deficiency or not. (Given that I rarely get outside – I tend to assume I will have.)
    Painkillers – I am no better off yet. Still spending £40 or £50 a month on stuff like Panadol Extra. Paracetomals do nothing.
    A big worry is I have no idea what the GP’s view about ME or CFS is. I will just have to hope for the best. (The surgery was chosen because of the easier procedure to join.)

  • New Glasses :
    I prioritised this (over trying to meet new GP) as I hoped that new glasses might help reduce my headaches. The last eye test and new glasses was over 5 years ago.
    I used Specsavers Healthcall as they do home visits. And paid £310 for new varifocal glasses. My distance px had got quite a lot worse. But my reading px had improved. I was told this wasn‘t unusual as sometimes one can compensate for the other.
    Or I think that’s what I was told.
    While I was very grateful for the home visit – I wouldn’t really recommend them.
    Their procedure was difficult to fit in with if you have ME. They couldn’t arrange an appointment with much notice. Because they cover a big area and don’t know where they will be going day to day – until their computer prints off a list for the next day. So they would phone in the afternoon and say “we want to come out tomorrow morning”. This was very difficult with my ME severely affecting me. A lot of the time my phone is off, or on silent. And the whole process (just 2 visits) took around 2 months to manage. Even the 2nd visit to fit the glasses I really wasn’t well enough for. But I agreed as had said No to quite a few other visits.
    And I now have glasses that I cannot comfortably read with . . .
    (Yes, I have emailed them twice after I realised this. With great difficulty. No reply yet.)

  • Smear Test :
    This was very overdue and I also prioritised this over meeting the new GP.
    Mainly because of having blood since 2011 or longer (that I shouldn’t be having). In fact when I started trying to focus on getting this done – I didn’t really have a GP at all.

My last contact with the previous surgery had been that absolutely atrocious phone call I received from a foreign sounding GP following my request for painkillers.
Then I had spent maybe 8 months trying to join a health centre where an ME charity had mentioned there was a good GP.
The GP himself may well have been good (in his treatment of people with ME or CFS) – but the staff were awful. They acted like they had no knowledge, understanding or tolerance for this condition.
The nurse wasn’t very nice and changed the procedure for joining the health centre once I mentioned CFS (as I called it then). Then after 3 different attempts at explaining my health (and why I couldn’t get back into the surgery again) to different receptionists – I had to give up. The 3rd person was the worst. She would either argue with me – or go silent for long spells. And make sighing noises . . .
That last call lasted 9 minutes – I gave up after that. I felt exhausted and demoralised by the whole experience.

So, to get my smear test done I went to the Sandyford Sexual Health Clinic. This was a good solution for me as a friend had told me they were a walk-in clinic. Meaning I wouldn’t be in the position of booking an appointment then having to cancel on the day if not well enough to get there. I phoned to ask what choice of days I would have – as didn’t expect they would do smear tests every day. But unfortunately the walk-in service had ceased just 2 weeks before. This was a service that had been going for maybe 30 years too.

However I got to speak to a nurse over the phone when I explained my dilemma. She was incredibly nice. And went out of her way to tell me to make an appointment anyway, and not to worry if I had to cancel on the day. As cancellations are almost always taken by someone else.

I ended up getting a smear test, a womb biopsy, blood tests and an internal scan. Because of the issue with blood. Everything was fine. I had absolutely no anxiety about any of these tests. (My only anxiety with medical people is when I have to deal with anyone about my ME.)
I dealt with 3 different doctors – 2 at the actual appointments and one over the phone. They were all lovely. Very thorough and very professional.

The contrast between they way they treated me – and they way I’ve been treated over all the years with my ME – was astounding.
I actually send a letter saying thank you afterwards.

But this whole thing (the smear and other tests) took up perhaps a 5 month period. Because of me having to cancel some appointments and then re-arrange them. Like everything else – it was very exhausting for me. But totally worth-while and reassuring.

 

NB.
When I started writing this post I’m sure I had a different point in mind. Rather than just another summary of how shit all these ME symptoms are. And the medical updates.

But I can’t remember what it was and have gone off on a complete tangent here.

Bloody brain fog . . .


Continued :

Actually, the point is coming back now.

It was the fact I discovered I have 2000 followers on Twitter at the weekend.

Now I know this is peanuts compared to :

Stephen Fry – 12 million followers

Duncan Bannatyne – 774000 followers

To use just 2 examples.

But 2000 is a big number to me.

It was a pleasant and much needed boost to my self esteem. Which has been near rock bottom for a while now to be honest.

Its bad enough living such a limited life with so many symptoms day to day. When things have been really bad for years now – then add in the whole Bankruptcy stuff on top of it. (Still ongoing.)

But maybe even worse than this is the fact I feel almost nobody listens to a word I say – in real life. And there are valid reasons I feel this way :

1) Years of being ignored and dismissed by medical professionals.
Since the late 1980’s.
(There is one recent exception to this but I don’t want to jeopardise it by writing about it !)

2) Not being listened to by the Bankruptcy Adviser or the Trustee In Bankruptcy. Despite me using up huge amounts of energy explaining my health position.
Over and over and over.
Since 2014.
To the further detriment of my health.
What has happened is I have been ignored and not really represented at all in this Bankruptcy process. Despite it being about my Property business. And having chosen Voluntary Bankruptcy in an attempt to stop my ME getting even worse.

Again, I have been traumatised by this experience.
The nightmares I had been having for years (presumably because of the medical profession not listening to me) have been increased and intensified by this.

But maybe even worse emotionally is :

3) Not being heard or listened to by people in my life – just pretty much left alone. (Apart from husband of course.)

In the past and recently I have used up so much energy trying to explain stuff to friends, people, etc. About my ME.
Not to bore them to death with it – but just because I want to be able to see them, stay in touch, etc.
But if they don’t understand a bit about how limited I often am it can make things really difficult. And ends up with frustration and possibly annoyance from others.

Even when I was more well and could socialise more – I would often just get talked over or sort of ignored in some situations.
A lot of situations actually.
I have quite a soft voice which doesn’t help matters.
My husband would often say things like “people don’t want to hear about all that”. And I would get cut off.
To clarify : I have no desire to bore folk to death about my health challenges or limits in a social situation. Nobody would. I’m meaning times when it felt necessary.

One example, out of hundreds of situations over the years :

This could be 10 years ago now :
Hubby and I were 2 hours late for a small drinks get together. With people who are very close to hubby – almost like parents. Two people were visiting from Australia. When we eventually arrived there was a bad atmosphere and clearly everyone was upset with us. One person went as far as to say “you shouldn’t have bothered coming at all”.
Wow . . .
The reason for our lateness was I had needed a lot more time than usual to recover and get my strength back after having a shower earlier in the day.
Now, all these people knew I had ME. But like many folk probably didn’t understand how it can limit me. So I tried to explain myself, how it was my fault but really couldn’t be helped, etc.
But I was just shut down, dismissed, talked over, etc.
And we just had to sort of endure everyone’s annoyance and irritation all evening.
Eventually I just gave up trying to speak – as even hubby wasn’t helping things by talking over me !

This is just one example of a type of situation in which I may try to explain a wee bit about how ME affects me.
Not just to talk about it for the fun of it.

This sort of thing would upset me although I tried hard not to let it. To me this was hurtful and rude. But to him it was ok.
But he was usually right I guess – so many people just don’t want to know or hear about anything difficult.
If I expressed any dismay at this I was told I was too sensitive or over-thinking the situation.

He has said to me so many times over the years :

“ People don’t understand, they’re not interested and they don’t care “ . . . .

(But what if they are meant to be friends?)

I think he keeps saying this partly to try and stop me feeling upset (even though it upsets me more every time). And to keep my expectations of people low perhaps. To be more accepting of poor treatment.
Also, maybe to absolve him of not being able to get friends to understand either. (Maybe of not being able to help me with doctors either. Apart from collecting prescriptions etc.)

He says he explains to people “until he’s blue in the face”. But they’re still not interested or don’t understand.
And its just the way it is.

I personally tend to feel “it’s just the way it is” if you have ME or CFS.
Not so much with other serious illnesses?

Needless to say all this hasn’t helped me.
And I’ve used up so much energy trying to understand it. Because I feel I wouldn’t behave that way if situations were reversed. I mean, it doesn’t take much to give out some kind words – does it ?
Or maybe it does.

This has turned into a very long post. Much much longer than planned.
It will take me days to recover from typing this.

But the 2000 twitter followers has inspired me today.
And given me a well needed emotional boost.
Made me realise that some people do want to hear what I say.
And are interested.
And do care.

And it couldn’t have come at a better time. Because I think I was starting to give up – mentally and emotionally.

We all need to feel heard after all.

 

 

 

 

 

 

 

 

 

 

 

2015 in review

Leave a comment

The WordPress.com stats helper monkeys prepared a 2015 annual report for this blog.

Here's an excerpt:

A San Francisco cable car holds 60 people. This blog was viewed about 2,300 times in 2015. If it were a cable car, it would take about 38 trips to carry that many people.

Click here to see the complete report.

Older Entries

Utting-Wolff Spouts

Encompassing the natural and social sciences, politics and social justice issues

A Prescription for M.E.

My blog from the intersection of patient & pharmacist

Ordinary Miracles

This blog is my story about a life forever changed by chronic illness. I hope you'll laugh and cry with me as I try to make sense of it all. Oh, and nothing I say should ever be construed as offering medical or legal advice.

Not Mid Morning Matters

JD in the Morning, off air...

Stress Management Coach Jayne Cox | Live the Life You Want

ANNE DEAN : My journey with ME - a long one and still ongoing. But I will get there. Comments, thoughts & general rants.

Lesism

The greatest dreams are achieved with open eyes and a conscious mind...

Thoughts About M.E.

Myalgic Encephalomyelitis (M.E.) Advocacy

ANNE DEAN : My journey with ME - a long one and still ongoing. But I will get there. Comments, thoughts & general rants.

Heroes Not Zombies

becoming not being.......

Two Rooms plus Utilities

ANNE DEAN : My journey with ME - a long one and still ongoing. But I will get there. Comments, thoughts & general rants.

Jayne Cox

Specialist Women's Coach

Dead Men Don't Snore

Learning to Live with Chronic Illness

valerieeliotsmith

Law and health; due process and civil society

Chronic Fatigue Survivor's Blog

My experience recovering from Chronic Fatigue Syndrome (CFS/ME)

ANNE DEAN : My journey with ME - a long one and still ongoing. But I will get there. Comments, thoughts & general rants.

ANNE DEAN : My journey with ME - a long one and still ongoing. But I will get there. Comments, thoughts & general rants.

The World of Northern Bay Girl

My World, My Life, My Blog

Words of Joy

ANNE DEAN : My journey with ME - a long one and still ongoing. But I will get there. Comments, thoughts & general rants.

ANNE DEAN : My journey with ME - a long one and still ongoing. But I will get there. Comments, thoughts & general rants.