In Jan 2008 I met a doctor in Elgin (David Mickel) who asked me how long I had been suffering from CFS.
I didn’t know the answer – it seemed like forever.
He then turned the question around to :
“when do you last remember feeling fully well” ?
And that was easy – the mid-1980s. Maybe the late 1980s at best.

Quite a long time ago then . . .

Its funny how it can be easier to remember a “feeling” rather than precise details. And when I thought back to how it felt when I was fully well – the time/place etc all came back to me easily without having to think about it.

But my story is not unusual.
Throughout the 1990s I sort of managed but quite badly at times. And it got harder and harder as the years went on. Especially at work.
Eventually diagnosed late 2002 or early 2003.

My CFS did, and still does, fluctuate quite a lot.
And I know that I am actually very lucky with this. As it does allow me to do things and have a life. Even if quite a small life at times.
And although it may feel “severe” to me sometimes – I think it would more likely be classed as mild to moderate CFS.

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